Want to know what life with a chronic illness is like? We have big news. Like huge. But instead of excitedly announcing it to the world, I am spending my days in bed laying stiff as a board, because curling up in a fetal position, no matter how much I desperately want to, is just too painful.
To make matters worse, my presumably more communicative GI didn’t respond to calls over two days. he did respond over the portal (which I didn’t use initially because it says it is only for non-urgent issues and can take 2 days to respond). He told me what to do, but that was all. There is no indication that he called in the necessary Rx changes and he has failed to respond to my follow-up question for 24 hours and counting. I am considering myself ghosted.
This is where the big news comes in. We are moving to Woodacre, California in March. It is in west Marin County and is the most rural that I have ever lived. There is no mail delivery. We have to get a P.O. Box. Even the goat farm had mail delivery.
But it is not as isolated as it sounds. It is 45 minutes from San Francisco where there are world class medical facilities. It is also, where we can socialize outdoors 3+ seasons of the year. And the house we are renting has beautiful decks and a bathroom that we can isolate from the rest of the house. Guests can use it unmasked without putting anyone’s health at risk. Most importantly, there are lots of friends and family nearby to socialize with, those 3+ seasons of the year.
My point? Maybe my new doctors will be more responsive. I already have one doctor in place. He is a Naturopath with extensive experience with gastroparesis. He is located in Oregon, but he is licensed in California so we can do televisits. Worst case scenario? I have to make a trip up to Portland to see him. I am sure my friends will be crushed.