I haven’t been up to posting in a while. First I was recovering from our trip. That took a while. Then I really started seeing the benefit from the Nerva hypnotherapy and the Cymbalta.
The pain that has been a constant presence for the previous 6 months had quietly moved into the background until it just faded away. If you have even mild IBS (what it is labeled for) or gastroparesis (what I used it for), I cannot recommend Nerva enough. Available on both the Apple and Google app stores. Worth the $149 and the 15 minutes a day. Truly.
With the motility pain gone, it was finally time to see if I could start increasing the speed on my pump. In just a few weeks, I have gone from being stuck at 25 ml per hour, where I had been for months. I am now up to 33ml per hour. And based on how I am feeling today, we will stay here for another day or two before I am ready to increase to 34ml per hour. It is slow going. But, it is progress.
My body is responding by storing all of those new calories because I am gaining weight again. I don’t know for sure that this is the case, but I think it is the cymbalta. I gained a whole bunch of weight when I went on it the first time.
I am almost up to 1,000 calories a day. Sadly, since so much is going into storage, I am not getting the benefit of those new calories. I remain stuck in limbo where I can only knit a couple of rows on really good days. I want more functionality. But wanting is not enough to make it happen, so I will just have to go back to radically accepting my reality and go back to being patient.
December is a month of GI visits, as I have appointments with 3 of them. Including my tube GI. I am planning on asking her again about when I am due for a tube swap. I am not eager to get rid of the one I have. We have a working understanding and it doesn’t cause me undue pain. But it feels like it may be getting a bit worn out. I would rather plan a tube swap than wait until the tube flips or there is some other emergency. We will se what she has to say.
One thought on “Progress!”
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Eva, so glad you are able to consume a reasonable amount of calories. I think it’s not uncommon for your body to react to the end of a period of near starvation by storing calories. Between that and a medication that has caused weight gain in the past, meh. Not a great result. But this seems like it must have an end, when your body adapts and says, “hey, I’m not starving anymore!” and starts to allow use of the calories. Heavy sigh. 1,000 calories/day probably isn’t quite adequate yet, hope you get there soon. Here’s hoping for more energy soon! Xoxoxo