The UTI has been resolved and I feel somewhat better, but not as better as I would like. Normally, after one heals from an infection, there is a wonderful feeling of general healthfulness. A feeling of truly being better. It often comes with a rush of mojo so you feel like you can take on the world. With chronic illness, not so much.
I felt when the antibiotics kicked in. And I have felt the infection slowly resolve. But any boost of energy was lost in me just trying to catch up the most basics. It is frustrating beyond belief. It is also an opportunity for me to practice my radical acceptance.
It has not all been bad. A bit confusing perhaps, but not bad. Inexplicably, I have been finishing my feed without increasing the speed on my pump. Some days I finish early. Today I finished right on time. I have no idea what is going on. But I am getting full nutrition, so I am not complaining.
I am complaining (a bit) about some ongoing discomfort with my tube. But it is not so bad that I don’t think I can hold on until my appointment with the motility doctor on July 10th. The motility doctor will most likely NOT be the doctor who can help me with my tube, but I am hoping that the benefit of a motility center is that there is at least one doctor there who can manage my tube. And hopefully they can do something about it quickish, because I am now in the window when my tube should be replaced (four to six months, with six months being in very early August).
I am not spinning, but I am beginning to read easy novels again. Actually, I am juggling a YA science fiction book (which is not my usual genre, but it is the first novel of someone I have subscribed to on substack for a couple of years and I am curious about his fiction) and an autobiography of a cartoonist returning from WWII. David encountered it while unpacking and passed it on to me. Both are slow going, but going, which is about all that matters to me right now.
I am increasingly frustrated with Facebook’s algorithm and how so many more people saw the post that I had moved to Woodacre and no one saw the link to my blog. Basically, I am just about completely fed up with Facebook, but I cannot leave because that is where the critical mass of my people are. Anyway, if you want to keep up on my adventures, you can always subscribe on this page and you will get the posts in your email.
One last thing, because I want to end this post on an up-note. Our move to California has been so good for me. It has been great to be able to get together with friends and family from near–and in some cases from far-ish (east coast)–in our backyard. Completely maskless and in our own little bit of forest. definitely an upgrade.