After 10 days at home, I finally made it out of the house this week for early voting. Even though the polling place was well within a mile of our apartment, as usual, David drove me to save my energy. I hadn’t been out in so long that the whole way, I had my nose pressed against the window, like a puppy, just trying to take it all in.
Afterwards, David suggested that we go to Astoria Park. I had been thinking park-like thoughts myself, so off we went. I didn’t have a lot of energy, natch, so we just walked from the parking lot to the river. But even that was exciting as we were swarmed by a flock of pigeons. I kid you not.
We saw some geese swimming placidly in the toxic sludge East River, including some juveniles. We also looked at the pretty pieces of sea glass that pretty much make up the shoreline. The pigeons claws made a lovely tinkly sound when walking over the glass. It’s all great as long as you ignore the fact that it is all trash.
The recovery was a bit rough. That hour or so out and about meant that I spent most of the last two days in bed. Basically only getting up to “eat” and then laying back down again. Fortunately, I am feeling much better today and I am back to where I was before Tuesday. Needing about a hour to recover from at least the first few “meals” of the day.
I woke up early this morning, so I took the opportunity to drink my first few ounces of formula at 6:30am, Which means that at 2:40pm, when I write this, I am just about 30 minutes* from my 4th “meal” of the day. Which also means that this may be one of those rare days where I manage to get ~17 oz. of formula in me, as opposed to my usual 14oz.
Still waiting to hear from my GI’s office about ordering my tube feeding supplies, including a pump and formula. I can imagine that they are simply fighting with my insurance company, having to explain that they can’t just authorize the procedure to insert the tube, but concomitant with that comes approving tube feeding supplies and support. I have emailed them 3 times (their preferred method of communication), but if I don’t hear from them by early next week, I will call them.
That is all the big news, which is good because I am really fading.
*My rule is that I eat every two hours if I can tolerate it. Some days I need more time than that between meals. And of course, if I get hungry sooner than that, I am always welcome to more formula (she types, hearing David’s voice in her head).